Two weeks ago (Monday, October 2nd) my parents came down to visit with Zach, Peyton and Helena so we could go to The Crayola Experience and then visit Emma. I liked naming the crayons and a few other activities and watching the presentation of how crayons are made, but was anxious to see our baby girl. We are still only allowed to have two people in Emma’s NICU room at a time, and one of those people when we have visitors is either me or Michael. I took Zach back first since he had not met Emma before, then my dad (for his second time seeing her), then my mom. They took turns watching Peyton and Helena in the lobby since little kids aren’t allowed in the NICU without paperwork saying they have updated shots, and even then only siblings are allowed in, not cousins. Peyton ended up crying because she didn’t get to really see Baby Emma. The FaceTime video wasn’t good enough. When my mom came back, she brought a bag of Halloween goodies. Luckily Emma was having another good day and liked the attention so she didn’t mind wearing the pumpkin hat for pictures.
Last Sunday (October 8th) after kayaking we visited Emma who was having another really good day. She's actually had a lot of really great days this month. I keep waiting for the doctors to tell us that she's back on track to come home in six weeks, but they haven't yet. Not only was she not having episodes, but she was also smiling at herself in the mirror and playing with her toys. The nurse, Kim, had put a new pretty dress on her so we took advantage of her happiness for another family photoshoot. Kim was busy with another baby when we got there so Michael took pictures of me holding her.
We had a meeting two days later with the nurses and doctors. The week before they found fractures on her lower ribs and wondered if she has Brittle Bone Disease, but testing showed she does not. Thank goodness- poor baby doesn't need any more problems. The ribs are healing, but her trachea and bronchi are the main issues which cause the episodes when her throat closes, so we still don’t know when we can bring her home. I’m hoping in December, before Christmas.
On Thursday (October 12th) along with Michael's birthday, it was also Emma's 4 month "birthday" and since she was doing so well we got pictures. I bought the four soft pumpkins at Target for $1 each. I want to get a bunch of real pumpkins so it looks like she's in a pumpkin patch, but I keep forgetting to ask security if that's allowed. Not sure why it wouldn't be. I'm trying to keep our life as normal as possible, still wanting to do as much as I would if she were home already. I have Halloween off this year so I'm planning on dressing up at the hospital for pictures. I have an idea of what Emma will be (the easiest costume to "make" ever- just one step up from throwing a sheet over her and saying she's a ghost.. maybe we should all be ghosts. Ghost family!) but Michael says he wants her to be something different. I don't even know what he wants to be for Halloween. He says he is going to dress up at work.
It makes me so happy that she has been smiling a lot more lately and laughing a little bit. From what I have seen she doesn't cry as much as I assumed babies do. Maybe because she stays fed every three hours and we change her diapers often, or because I'm only around her for 1-4 hours per day. Everyone has been saying how great she has been doing lately, so that's always wonderful to hear. Max, the music therapist, recorded me reading a short version of the Wizard of Oz for the nurses to play when I'm not there. Apparently Emma loves it so they keep it on repeat.